Fighting Chronic Lyme Disease

Deanna’s Update 10/15/2016

Apologize for the lack in updates recently. Have had intense struggles the past year and many close calls and still amazed I am breathing today. Have made a few trips to LA for treatment and fought off a lung infection at the first of the year. IVIG (which is human plasma) had to be stopped from horrifying reactions. Unfortunately, I was administered a recalled bottle of Octagam that swelled up my face, throat, and left me with welts all over last April. Then tried another brand two months later and could no longer tolerate IVIG. I made the most difficult move in my life back home to Del Mar on July 29th. Never thought I would see my condo again when I left it in January 2012 in an emergency to try and save my life. My condo needed many repairs upon returning home, but it is finally livable again thank goodness. The transition to living on my own has been full of obstacles and turn over with caregivers. Many of my friends no longer live in San Diego, and it has been an adjustment trying to find help. Right after returning home I had another TIA, and then my picc line of 5.5 years got infected and pulled. This has left it very hard to get IV’s currently and keeping my blood pressure up is always a struggle. Of course I have tried many new cures in the last year and will have to add them to my Lab Rat page on this site. Much of 2015 was spent in Washington working with Lyme doctors that left me in a worsened condition after cavitation surgeries gone wrong and treatments failing.¬†Thank you everyone for your support. I continue to fight for those who have lost the battle, and for those of us searching for how to get into remission. Love to all.

1 Comment
  1. Who helped you?
    Is Dr Julia Griffith good for adults with lyme?
    Also who hurt you that I should avoid?
    I am in CA.
    Any clue which insurance covers IVIG in CA?
    Thanks,
    Sarah

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"In the fullness of time, the mainstream handling of Chronic Lyme Disease will be viewed as one of the most shameful episodes in the history of medicine."
Kenneth B. Liegner, MD
Board Certified Internist + training in Pathology and Critical Care Medicine / NY
doctor